Home for 4 days

Hello everyone!

I'm sorry I didn't post this sooner, but Zach was discharged Friday from the hospital! His complete immunity count was still very low, but the dr said since he never ran a fever and wasn't actively sick, there was no reason for him to stay as we could do the same thing at home.

So Friday was a blur. I had to call Jim at work and he left and of course a million trips to the car with all the "stuff" I take with us.

We have to go back for blood work on Monday and Wed for bone marrow aspiration and cat scan of his chest. Then, if his "counts" are up where the drs can restart chemo, he will stay Wed after the bone marrow and ct of his chest and start chemo Wed. So only 4 days off with 1 trip up on Monday. This type of schedule is more of the norm than getting 10 days off. He has done so well...no fever which is very uncommon. Wed will start with the lumbar puncture and chemo injected in his spine which is what they do at the beginning of every round. They then increase one of the chemo's 10 fold . The dr's were very sure to tell me that "universally"kids will react to the increase with high fevers, body aches and flu like symptoms......so lets pray that Zach handles this as he has done all the others.....out of the box!

So, round 3 of 5 starts Wed if his counts are high enough. We are enjoying our time at home, but its way too short.

The weather here in Vermont is starting to change but has been warm this weekend. Everyone who knows me well knows I didn't move here for the heat.....bring on the crisp fall weather and then the winter. Of course, we have no clothes for this type of weather...oh darn, i will have to shop! The squirrel I names "Bernie" that Zach and I watched all weekend was busy collecting some kind of nut or seed from a tree and burying them in random places in the grass and flower beds.....he must be exhausted tonight as he was a busy squirrel today!

Ok...thats it for now! I will post more on Tuesday when I know what the plan of action is going to be.

Zach has told me to say this " Don' t worry Mrs Mancini, I'm going to send you leaves and some to Sawyer too! My noni says we are going to collect them and wax them and send them in the mail"

Again as always, to everyone who has added Zach to their prayers, to prayer lists at churches, have sent things to Zach (cards. letters, gifts) and to those who have had fund raisers/benefits for Zach.....Thank you for taking the time to do what you do. I haven't sent out individual notes as there are so many, so I hope everyone understands and accepts our gratitude via this blog. Just know that what you all are doing is working, is appreciated and makes us realize how much good there still is in todays world.....Zach is such a lucky little boy in so many ways!

Hope everyone has a good week!
God Bless
Steph, Jim and Zach